Canadian privacy & access decisions

The complainant, representing over twenty physicians, alleged that Health Canada's Non-Insured Health Benefits (NIHB) Program collected more personal information than necessary for adjudicating drug benefit claims for First Nations and Inuit people. Specifically, the complaint focused on the detailed patient information required for the approval of Limited Use drug benefits. Health Canada maintained that it only collects information essential for providing drug benefits, with data fields based on clinical criteria defined by expert drug-review committees. The OPC reviewed submissions from both parties and consulted with the physicians, focusing on a representative sample of Limited Use forms. The investigation concluded that Health Canada demonstrated a direct connection between the information collected and the purpose of collection, and that the information was necessary for administering the NIHB Program. Consequently, this aspect of the complaint was found to be not well-founded.

• Whether the information collected by Health Canada on Limited Use forms for drug benefits constitutes personal information under the Privacy Act
• Whether Health Canada's collection of personal information on Limited Use forms relates directly to an operating program or activity of the institution as required by section 4 of the Privacy Act
• Whether the specific data fields requesting detailed diagnostic information (e.g., exact number of swollen joints) are necessary for the adjudication of drug benefit claims under the NIHB Program